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About Endosalpingiosis

Endosalpingiosis can be a painful reproductive condition. It is similar to Endometriosis, but instead of endometrial-like tissue as occurs in Endometriosis, tissue from the fallopian tubes is found outside of the tubes and elsewhere in the pelvic cavity, and may cause pain, infertility, both, or neither.


It is unknown what causes this condition. It is generally accepted that the condition develops from transformation of
coelomic tissue. It is often an incidental finding and is not usually associated with any pathology.


It is similar to Endometriosis where most of the symptoms are the same. 1 in 10 women have Endometriosis. There is research being done on Endometriosis but not on Endosalpingiosis.

Symptoms

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Stomach Ache
  Common  
  • Pelvic pain

  • Pain between periods

  • Back pain (can be chronic)

  • Dyspareunia

  • Headaches

  • Mood swings

  • Difficulty sleeping

Woman Sleeping
Associated
  • Heavy menstrual bleeding

  • Bleeding between cycles

  • Rectal bleeding

  • Gastrointestinal issues

  • Pain with bowel movements or urination

  • Fatigue

  • Nerve Pain

Diagnosis

Diagnosis isn't easy.

Endosalpingiosis is diagnosed by a pathologist on excision (e.g. biopsy). This means that diagnosis requires laparoscopic surgery. It is characterized by cysts with tubal-type epithelium (e.g. ciliated epithelium) surrounded by a fibrous stroma. It is not often associated with hemorrhage.

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Endosalpingiosis is occasionally found in lymph nodes, and may be misinterpreted as an adenocarcinoma metastasis.

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Diagnosis of endosalpingiosis is through laparoscopy, a surgical procedure that allows a surgeon to view the organs inside your abdomen and collect tissue samples for pathological evaluation. 

This nonprofit organization was founded with the mission of raising awareness for Endosalpingiosis, a rare disease that exclusively affects women. Endosalpingiosis Foundation Inc. vows to advocate and help the women impacted by this devastating rare disease through events and community support programs. 

Email: endosalpingiosisfoundation@gmail.com

Phone: (608) 609-5043

Registered Charity: EIN Number: 82-3793988

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